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Bioethics web archive

Collected by: National Library of Medicine

Archived since: Feb, 2016

Description:

A selective collection of websites documenting topics in bioethics, including a focus on ethical, legal, and social implication of gene-editing. Collecting began in 2016 following the launch of the Human Gene-Editing Initiative by the National Academy of Sciences and the National Academy of Medicine to facilitate decision making for the responsible use of human gene-editing research. Archived websites are primarily in English. NLM will continue to develop, review, describe, and add content to the collection.

Subject:   Science & Health Society & Culture

Page 1 of 1 (22 Total Results)

Title: Home Page | Presidential Commission for the Study of Bioethical Issues

URL: http://bioethics.gov/

Description: Web site for the Presidential Commission for the Study of Bioethical Issues, an advisory panel of the nations leader's in medicine, science, ethics, religion, law, and engineering that advises the President on bioethical issues arising from advances in biomedicine and related areas of science and technology. The Commission seeks to identify and promote policies and practices that ensure scientific research, health care delivery, and technological innovation are conducted in a socially and ethically responsible manner.

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Title: NIH Clinical Center Department of Bioethics

URL: http://bioethics.nih.gov/

Description: Web site for the National Institutes of Health (NIH) Department of Bioethics. The site features the department's research, publications, and training materials, and provides information on staff and alumni, department services, fellowship opportunities and relevant resources.

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URL: http://blog.bioethics.gov/

Description: Blog for The Presidential Commision for the Study of Bioethical Issues: 2009-2017 to communicate with the public about the commission and to discuss important issues in bioethics. This is the first location of the blog, which is no longer active.

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Title: Why This CRISPR Article, and Why Now? | In the Pipeline

URL: http://blogs.sciencemag.org/pipeline/archives/2016/01/19/why-this-crispr-article-and-why-now/

Description: Article titled, "Why This CRISPR Article, and Why Now?" by Derek Lowe published in Science Translational Medicine on January 19, 2016. The article provides a commentary on CRISPR patent fight.

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Title: Gene Drives on the Horizon: Advancing Science, Navigating Uncertainty, and Aligning Research with Public Values

URL: http://nas-sites.org/gene-drives/files/2015/08/Gene-Drive_Briefing-Slides_Final.pdf

Description: Presentation titled, "Gene Drives on the Horizon: Advancing Science, Navigating Uncertainty, and Aligning Research with Public Values," published by The National Academies of Sciences, Engineering, Medicine's Board on Life Sciences on June 8, 2016. The presentation provides an overview of the Committee on Gene Drive Research in Non-Human Organisms, a study on gene drives, the state of the field, and the ethics involved in gene research.

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Title: Home | Human Gene-Editing Initiative

URL: http://nationalacademies.org/gene-editing/

Description: Web site for the The National Academies of Sciences, Engineering, Medicine's Human Genome Editing Initiative, which provides researchers, clinicians, policymakers, and societies around the world with a comprehensive understanding of human gene editing to help inform decision-making about this research and its application. The site provides summaries of its international summits, information on the comprehensive study of the scientific underpinnings of human gene-editing tehnologies, their potential use in biomedical research and medicine -- including human germline editing -- and the clinical, ethical, legal, and social implications of their use known as the Consensus Study; updates on the latest news in the field and links to relevant activities.

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Title: The American Society of Human Genetics

URL: http://www.ashg.org/

Description: Web site for the American Society of Human Genetics (ASHG), the primary professional membership organization for human genetics specialists worldwide with the mission of advancing human genetics in science, health and society. The site provides information on the organization, membership, meetings, awards, ASHG's scholarly journal, The American Journal of Human Genetics, and education, policy and advocacy activities and resources.

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Title: Welcome to CGS | Center for Genetics and Society

URL: http://www.biopoliticaltimes.org/

Description: Blog titled, "Biopolitical Times," maintained by the Center for Genetics and Society. The blog features commentary and news on human biotechnologies. The site is no longer active and has migrated to https://www.geneticsandsociety.org/biopolitical-times.

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Title: Advocacy, Education & Empowerment | GeneticAlliance.org

URL: http://www.geneticalliance.org/

Description: Web site for the Genetic Alliance, an organization that advocates for access to quality genetic services, which they believe is critical to comprehensive healthcare. The site provides information on the organization, its programs, advocay, and publications.

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Title: The Niche Knoepfler lab stem cell blog

URL: http://www.ipscell.com/

Description: Blog titled, "The Niche: Knoepfler Lab Stem Cell Blog," maintained by Paul Knoepfler, a professor at UC Davis School of Medicine in the Department of Cell Biology and Human Anatomy. The blog features content related to stem cell research and policy.

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Title: Who Owns CRISPR? | The Scientist Magazine®

URL: http://www.the-scientist.com/?articles.view/articleNo/42595/title/Who-Owns-CRISPR-/

Description: Article titled, "Who Owns CRISPR?" by Jenny Rood published on The Scientist web site on April 3, 2015. The article chronicles the fight over the CRISPR patent.

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Title: “Heroes of CRISPR” Disputed | The Scientist Magazine®

URL: http://www.the-scientist.com/?articles.view/articleNo/45119/title/-Heroes-of-CRISPR--Disputed/

Description: Article titled, "'Heroes of CRISPR,' Disputed," by Tracy Vence published in The Scientist on January 19, 2016. The article discusses the backlash within the scientific community in response to Dr. Eric S. (ES) Lander's "Heroes of CRISPR," scholarly article, which was published during the battle over the CRISPR patent involving the author.

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Title: CRISPR News (@CRISPR_News) | Twitter

URL: https://twitter.com/CRISPR_News/

Description: Twitter account for CRISPR News, which was created to report research developments and news items related to the gene editing tool, CRISPR.

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Title: Genetics and Society (@C_G_S) on Twitter

URL: https://twitter.com/C_G_S/

Description: Twitter account page for the Center for Genetics and Society, an organization that encourages responsible uses and effective societal governance of human genetics and reproductive technologies.

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Title: #CRISPR hashtag on Twitter

URL: https://twitter.com/hashtag/CRISPR/

Description: Twitter page for the latest tweets using the hashtag, "#CRISPR." CRISPR is a DNA editing method that makes genetic engineering faster, easier, and more efficient.

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Title: #genedrivestudy hashtag on Twitter

URL: https://twitter.com/hashtag/GeneDriveStudy/

Description: Twitter page for the latest tweets using the hashtag, "#GeneDriveStudy." The hashtag refers to CRISPR research invovling gene drives, which are systems of biased inheritance that enhance the ability of a genetic element to pass from organism to its offspring.

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Title: #GeneEditStudy hashtag on Twitter

URL: https://twitter.com/hashtag/GeneEditStudy/

Description: Twitter page for the latest tweets using the hashtag, "#GeneEditStudy." The hashtag refers to studies involving gene editing.

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Title: #GeneEditSummit hashtag on Twitter

URL: https://twitter.com/hashtag/GeneEditSummit/

Description: Twitter page for the latest tweets using the hashtag, "#GeneEditSummit." The Gene Edit Summit is an international gathering of experts in human gene editing sponsored by the National Academy of Sciences and the National Academy of Medicine's Human Gene-Editing Initiative. The summit was created to host discussions surrounding the scientific, ethical, and governance issues associated with human gene-editing research.

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Title: No One Should Edit The Genes Of Embryos To Make Babies, NIH Chief Says - BuzzFeed News

URL: https://www.buzzfeed.com/nidhisubbaraman/gene-editing-ethics

Description: Article titled, "No One Should Edit the Genomes of Embryos to Make Babies, NIH Chief Says," by Nidhi Subbaraman published on the BuzzFeed web site on July 14, 2016. The article reports on the National Institutes of Health (NIH) Director, Francis Collins' statements to a committee gathered to discuss the ethics of gene editing, which underscored the NIH's position that it will not fund research on editing in human embryos because of regulatory and ethical concerns.

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Title: Control of CRISPR, biotech’s most promising breakthrough, is in dispute - The Washington Post

URL: https://www.washingtonpost.com/news/wonk/wp/2016/01/13/control-of-crispr-biotechs-most-promising-breakthrough-is-up-for-grabs/

Description: Article titled, "Control of CRISPR, biotech's most promising breakthrough, is in dispute," by Carolyn Y. Johnson published on the Washington Post web site on January 13, 2016. The article discusses the battle over the CRISPR patent.

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Title: A social media war just erupted over the biotech innovation of the century - The Washington Post

URL: https://www.washingtonpost.com/news/wonk/wp/2016/01/20/is-a-history-of-biotechs-hottest-breakthrough-propaganda/

Description: Article titled, "A social media war just erupted over the biotech innovation of the century," by Carolyn J. Johnson published in the Washington Post on January 20, 2016. The article covers the backlash in response to the Dr. Eric S. (ES) Lander article, "Heroes of CRISPR," on Twitter in the midst of a dispute over the CRISPR patent involving the author.

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Title: WHO | Gene editing

URL: https://www.who.int/ethics/topics/human-genome-editing/en/

Description: Page titled, "Human Genome editing," on the Global Health Ethics section of the World Health Organization (WHO) web site. The page describes the WHO expert panel on the topic.

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Page 1 of 1 (22 Total Results)